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Everything you need to know about Dysautonomia and POTS: Dysautonomia Awareness Month

Blue text: Dysautonomia Awareness Month overlay on image of Blonde woman taking selfie in mirror wearing a blue mask, cream top with words be kind, pink jacket and brown pants standing with a iv drip

It’s October, which means it’s Dysautonomia Awareness Month! You’ve probably heard about Dysautonomia by now because I’ve been advocating and sharing infographics every October for years now… this year I have some new and updated stats I wanted to share with you all.

If you want to check out my previous advocacy posts, you can find them here:

Making Invisible Illness Visible

Taking pictures at my worst is my least favourite thing to do but how else do we make the ‘invisible’ moments no one sees visible? I had a hospital trip last week for my POTS management so it’s right on time for awareness month.

We should never have to convince anyone of how we live and struggle but still people choose to ignore it or decide not to look and see it.

Although I ‘hide’ things well … this illness isn’t purely invisible. If you look hard enough you’ll see how illness affects every aspect of my life.

Answering Common Questions through Shareable Infographics

To increase funding and decrease diagnosis delay, Dysautonomia and POTs desperately need more awareness. Over the years I have been committed to creating infographics and shareable content so that information is more easily accessible.

Please take the time to have a read through these infographics for more information and consider sharing them to raise some more awareness 💙

Is POTS and Dysautonomia Rare?

WHAT IS POTS? Next to red heart  FINDYOUROWNHOPE.COM  IN BLUE text box: Postural Orthostatic Tachycardia Syndrome is a condition which affects the autonomic nervous system and can impact the body's entire functioning. IS POTS/DYSAUTONOMIA RARE?Inside green rectangle: NO, IT'S NOT. POTS IS ESTIMATED TO IMPACT1 TO 3 MILLION PEOPLE IN USA. AND 70 MILLION PEOPLE WORLDWIDE next to image of world  POTS IS AS COMMON AS WELL KNOWN DISORDERS LIKE MULTIPLE SCLEROSIS AND PARKINSONS ISSUES WITH DIAGNOSISON AVERAGE PATIENTS SEEDOCTORS BEFORE RECIEVING7 DIAGNOSIS@FINDYOUROWNHOPE

What are the issues with and barriers to diagnosis of POTS and Dysautonomia?

Black bold text on white background POTS: Postural orthostatic tachycardia syndrome next to a blue heart ISSUES WITH DIAGNOSIS in a blue box  @FINDYOUROWNHOPE 90% ABOUT OF POTS PATIENTS ARE FEMALE. WITH MOST AGED BETWEEN12 AND 50. Next to cartoon Women  DUE TO IT'S SYMPTOMS & LACK OF AWARENESS..MISDIAGNOSIS IS COMMON75% OF PATIENTS WERE TOLDTHEIR SYMPTOMS WERE"ALL IN THEIR HEAD"...PRIOR TO DISGNOSISPicture of cartoon head.  APPROX. 1/2  OF PATIENTS DEVELOPED POTS AFTER AN INFECTION EVEN COVID-19. Image of cartoon pills.  FINDYOUROWNHOPE.COM

What is Dysautonomia? What is POTS? What are the Symptoms?

How does POTS and Dysautonomia impact patients lives?

White background with black text. Small circle image of white male smiling and brown hair. Black text: Liam @livingwithulcerativecolitis
Chronic illness isn't just some tablets to swallow and few days off work.
It's lost friends, broken relationships, sacrificing of hobbies, forgotten passions, all the while feeling like you have no value or purpose in life.
Please consider this before you cast judgement.

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1 COMMENT

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