It’s October, which means it’s Dysautonomia Awareness Month! You’ve probably heard about Dysautonomia by now because I’ve been advocating and sharing infographics every October for years now… this year I have some new and updated stats I wanted to share with you all.
If you want to check out my previous advocacy posts, you can find them here:
- I grew up with symptoms of POTS (a type of Dysautonomia). From preschool years I complained of weird symptoms and was continually told everything it was ‘normal’. For more about my story read My Story Hair for Hope: Why I am Donating 40cm of My Hair to Charity.
- Have more questions? Have a read of the Common Questions I get asked on POTs.
- Want to learn about this ‘Uncommon’ Illness and Misdiagnosis? Read this article to learn more about it.
Making Invisible Illness Visible
Taking pictures at my worst is my least favourite thing to do but how else do we make the ‘invisible’ moments no one sees visible? I had a hospital trip last week for my POTS management so it’s right on time for awareness month.
We should never have to convince anyone of how we live and struggle but still people choose to ignore it or decide not to look and see it.
Although I ‘hide’ things well … this illness isn’t purely invisible. If you look hard enough you’ll see how illness affects every aspect of my life.
Answering Common Questions through Shareable Infographics
To increase funding and decrease diagnosis delay, Dysautonomia and POTs desperately need more awareness. Over the years I have been committed to creating infographics and shareable content so that information is more easily accessible.
Please take the time to have a read through these infographics for more information and consider sharing them to raise some more awareness
Is POTS and Dysautonomia Rare?

What are the issues with and barriers to diagnosis of POTS and Dysautonomia?




What is Dysautonomia? What is POTS? What are the Symptoms?


How does POTS and Dysautonomia impact patients lives?







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