Category: Awareness

The Difference Between ‘Being Tired’ and Chronic Fatigue Syndrome

So I haven’t found self isolation too hard, stressful or different to my normal life. Why? Because my life changed when I was officially diagnosed with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome in 2013. ⁣⁣Although this illness is INVISIBLE we are not. ⁣ I originally shared this piece on Medium. Continue Reading

What you don’t see

What you don’t see. ⁣⁣They say a picture tells a thousand words… ⁣but a picture only shows so much. ⁣⁣A picture shows what happened in one second of that day, it doesn’t tell of the other 23 hours, 59 minutes and 59 seconds. ⁣⁣Instagram is a highlight reel, ⁣what you Continue Reading

Why We Need To Talk About Endometriosis

Endometriosis Awareness Month is now coming to a close but how could I let it end without sharing a post on my blog? If you follow me on instagram @findyourownhope, you’ve probably seen awareness posts throughout this month … but I have also been busy advocating for endo in other Continue Reading

How to stay calm in a crazy world: dealing with uncertainty

Just a small post today to address the craziness that is going on lately.  Life is uncertain. Nothing is guaranteed and things don’t always go to plan. It’s an anxious time.  What has helped me … However, one thing that has helped me throughout my life is trying to live Continue Reading

News flash: you can do everything right, and still be stuck

Starting the new year is a hopeful time, we make new resolutions, goals and there is an overwhelming ‘new year, new me’ culture. However, the new year is also very emotional as we reflect upon the year before. It is undoubtedly true to say that we can try our best Continue Reading

Good from the bad – hobbies and habits we gained since becoming sick

A few weeks ago I was reflecting on how much my life has changed since becoming sick. Of course it has changed for the worse… but in many ways I have branched out, tried new things and gained new skills. So I decided to reach out to my fellow chronic Continue Reading

‘Uncommon’ illness and misdiagnosis: Dysautonomia Awareness Month

I am sick of medical professionals not understanding my condition, actually scratch that… I am sick of medical professionals not even knowing what my condition is. I am sick of having to explain it, and then justify it. So I will continue to raise awareness until there is education, until Continue Reading